Today my speech was pretty bad. It is hard to communicate with others. They need to be looking diretly at me to understand me better. I have a slow progressing form of ALS. So far my speech is the only thing affected, and my breathing a little bit. It is sometimes frustrating to talk, but I have always been such a talker it is difficult for me sometimes. I am very grateful to have such slow progression, but sometimes I just need to vent.
I get around just fine, and I have a Palm3 communication device so I can take it with me. It is very portable,but slow to use. People don't seem to have the time to wait for me to respond and that has been discouraging. I don't use it much. When I can get as fast at using it as I am at writing with pen and paper I hope to use it more.